Did You Know about Endometriosis? An incredibly common condition effecting millions.
We published 4 short videos based on a the sources listed in the resources and discussion with Heather Guidone a long time advocate for Endometriosis working at the Center for Endometriosis Care in Atlanta Georgia.
Here is the whole mini series back to back.
Heather C. Guidone, BCPA (she/her/hers)
Heather is the Program Director of the Center for Endometriosis Care (CEC), where she is responsible for managing the CEC’s comprehensive multidisciplinary treatment program along with facilitating the CEC's clinical research, disease education and advocacy, and legislative/public policy endeavors to promote better care for endometriosis and pelvic pain gynepathologies.
She also coordinates the CEC's MIGS/Endometriosis Fellowship Program alongside CEC Medical Director and world-renowned endometriosis expert, Dr Ken Sinervo. Heather is internationally known for her extensive professional involvement in the global endometriosis community, ranging from her appointment on various research funding review panels to development of lay and clinical health education campaigns designed to improve delivery of care. She has focused on 'bench to beltway to bedside' efforts in endometriosis education, advocacy, research, policy reform, patient-centered care and more for over thirty years and continues to collaborate on many global endeavors related to the disease.
Most importantly, however, she has deeply lived experience with advanced endometriosis, which informs and brings perspective to her professional efforts.
Supporting papers and links:
Endometriosis: new concepts in the pathogenesis, Pietro G Signorile and Alfonso Baldi.
An international terminology for endometriosis, 2021
World Health Organisation Data Fact Sheet.
The Center for Endometriosis Care's "About Endometriosis" page.
Nice guidance on patients presenting with suspected endometriosis
Patient led resources:
EndoVille -A blog site for those with the disease and those who support them.
EndoFierce An Instagram group for those with the disease.
The Endo Coalition A Facebook group for those with the disease.
Did You Know (Endometriosis) 4
Heather Guidone
Did You Know about Endometriosis? An incredibly common condition effecting millions.
Did You Know (Endometriosis) 1
Heather Guidone
Did You Know about Endometriosis? An incredibly common condition effecting millions.
Did You Know (Endometriosis) 2
Heather Guidone
Did You Know about Endometriosis? An incredibly common condition effecting millions.
Did You Know (Endometriosis) 3
Heather Guidone
Did You Know about Endometriosis? An incredibly common condition effecting millions.
All 4 Did You Know (Endometriosis)
Heather Guidone
Did You Know about Endometriosis? An incredibly common condition effecting millions.
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